Chris sailed through his fifth and final surgery this last Monday.  The first night was rough but he stuck it out with calm and bravado.

They opened his nose completely, broke it, aligned the septum after removing part of it, used the excess to replace missing cartilage, lined up his septum, which was slung to the left, centered his nose with his cupid's bow and sewed it into place.
 
The staff in Nationwide Children’s Hospital in Columbus, Ohio was beyond fantastic in their care of my 18-year-old boy.  In fact, each and every one asked for information to come and see him play at a local restaurant near where we live.

Today he took a walk around our lake, made himself a tasty lunch and is now watching the Toy Story special on ABC Family Channel.  He is out of pain, his nose looks beautiful and he is anticipating returning to the restaurant where he plays backup for a talented singer/song writer and beginning his job with an upscale Japanese restaurant where he will be personally trained by the owner.  Life is good.
 
It's funny how Children's Hospital has been a part of a major portion of my life.  At two months and then at four, I was admitted with a fractured skull, age four years found me again admitted with fourth degree burns and age nine for neurological study.  Age 15 found me practically living there with my friend, Patsy, one of the few female hemophiliacs at that time and age 16 saw me visiting her the final time a few days before she died.
 
That last evening, as I was leaving the hospital, a sound made me glance to my left.  In a small room sat a nurse feeding a baby.  What caught my eye was the fact that the baby was sitting upright.  I looked again.  The infant, hungrily eating, had a hole where his or her mouth should have been.  I remember saying a quick prayer and thinking I hope that baby has a mother who loves it.  Now I realize that what I had witnessed was a nurse feeding a baby born with cleft lip and palate.  God had given me a glance into my future.
 
It is odd when I reflect back on my 50 plus years journey with Children’s hospital.  It began with my healing, followed by the death of my friend.  Within the tragedy of losing Patsy lay a promise: a promise of a sweet babe who would need a home.

We seldom realize that we are witnessing what is to come.   It wasn’t until we got the call that a beautiful baby boy, born with cleft lip and palate, was looking for a family, that I realized my blessing and I knew, I just knew that he was meant to be mine.  I knew that it was destiny that made me visit Children’s that last, fateful night:  I was meant to say goodbye to my dear friend who I thought would be a part of my life for many years to come and I was meant to witness something that would help me a full 24 years later.
 
Perchance my odyssey with Children's ends here:  Chris' final surgery.  An era has passed; a chapter has closed.  Perhaps, when my sweet son moves on to make his own life and create his own family, I will return to Children’s…this time as a volunteer instead of a patient, visitor, or parent.  Life is good.

Recently I read an email from a young mother of a one month old baby born with cleft lip and palate. Her tearful post recounted a scene in her local grocery store earlier that day. As I read her account of what had taken place, I remembered a similar incident which happened to me and my son, and the anger began to build.

First, let me say that we mothers of children born with craniofacial anomalies are as proud and in love with our babies as any other mother. With today's sonograms and diagnostics, a mother often knows quite early in the pregnancy that her child will be born cleft affected. She has time during the pregnancy to mourn the loss of the child she envisioned and to accept that the baby she will bear will not be "perfect." And so, as she labors to bring forth her child, like most mothers giving birth, she is mainly concerned with birthing a living, healthy baby.

continued: 

http://www.associatedcontent.com/article/2218427/a_face_only_a_mother_could_love.html?cat=47

  Every spring, Chris and I order butterfly caterpillars.  We have an inexpensive, one gallon aquarium, where we keep them safe and snug, while they munch themselves to ten times their size, finally go into chrysalis, and then - the butterfly.

Usually, everything goes very well.  We watch them with awe...eagerly awaiting the beautiful painted lady butterfly that we know will emerge. They hatch…they dry their wings ... and then Chris, oh so carefully, places them on his finger, gently releasing them outside.   He always says, “Goodbye my baby.  Be happy!  Be safe!”

This year, things didn't turn out the way we'd hoped. We got our five caterpillars, and gave them a snug, safe “womb” in which to develop. We watched them with delight as they grew and grew, finally making that long journey up the sides of their jars to the lid, where they formed their “J” to go into the chrysalis stage.  With anticipation, we awaited the hatching, eager to see those beautiful orange and black wings spread out in flight. But, something went wrong.

Two butterflies were born with mangled, twisted wings. They couldn't fly. I waited a day, giving them sugar water, to see if the process was just taking longer than usual. Things didn't improve. Finally, I took them out into the bright sunlight, thinking that God's healing sun would dry their little wings. That's when I noticed they didn't have all of their legs.  Sadly, I told Chris to put them in the rose garden and leave them, hoping he wouldn't be there to see the inevitable: a bird swooping down to capture them to feed her young.  Such is the way of nature I reasoned. It's the only way.

As Chris was dutifully taking them down to place them by the roses, totally innocent of what I was asking him to do to his beloved butterflies, it occurred to me: nature doesn't HAVE to be this way. They don't have to be “perfect” in the literal sense of the word. If they couldn't pollinate and procreate, their right to exist wasn't automatically negated.  They could just be themselves, giving pleasure to a six-year-old little boy who loved them, and was willing to turn them loose simply for their own good.

Yes, their wings were mangled, and they flopped when they tried to walk, but they had their own beauty, their own value, their own perfection.

Chris and I are keeping the butterflies until they die a natural death.  I know it will be hard for Chris when they die.  He wont’ be able to look for them next spring, thinking that every painted lady he sees is his beloved Sam or Lou, but he will learn a very valuable lesson, and I'm pleased to learn it with him.

You see, Chris is adopted.  My husband and I were the seventh couple called.  Chris was headed for Children's Services because he wasn't “perfect.”  He was born with a moderately severe unilateral clefting of the lip, gum, and hard and soft palates. While he was carrying his butterflies down to the rose garden, I suddenly thought -- What if we had not been contacted, and Chris had not come home to me?  I would not be here, in this garden, enjoying the unique beauty and perfection of my son. I would not know of his goodness, his sweetness, his gentleness, and my life would not be as full and rich as it has become.

I called Chris to me, and oh so carefully, we returned Sam and Lou to their “womb” for safe keeping.  Within their imperfection dwelt perfection; their existence, a lesson so gratefully learned.  I looked at my son, and saw him smile.  I think that he understood long before I did.